GET INVOLVED IN SARCOIDOSIS RESEARCH
Find information about current sarcoidosis-related clinical trials in the UK. Tip: Change the search filters to choose currently recruiting trials in region(s) you are interested in. This page is continually being updated.
General NHS information and guidance about taking part in a clinical trail.
The UK Clinical Trials Gateway (UKCTG) website pulls through information about clinical trials and other research from several different UK registers. Click here to find to find sarcoidosis-related trials.
Committees and Taskforces
A sarcoidosis treatment guideline is being developed by a European Respiratory Society (ERS) working group and is due to be published at the end of 2018. The guideline will be used by doctors and other healthcare professionals to help them treat people with sarcoidosis in the best way possible. To help with this please complete this questionnaire. Your responses are anonymous and will feed into the activities of the ERS working group to ensure that patient views are considered.
NICE are looking for lay members to join the persistent pain guideline committee. They are looking for people with an understanding of persistent pain and the issues important to patients and their unpaid carers. This understanding could have been gained:
- through personal experience you have of treatment and care provided for you by the NHS
- as a relative or unpaid carer of someone who has used relevant health services
- as a volunteer or employee of a relevant voluntary organisation or support group.
Other Research Projects
Impact of diet and physical activity on symptom of pulmonary Sarcoidosis. L. Morton-Holtham (Kingston University).
Establishing the existence of non-pharmacological multifactorial patterns within Pulmonary Sarcoidosis. L. Morton-Holtham (Kingston University).
WISE (Worldwide Sarcoidosis Research Study) A research study designed to gain more information about the characteristics and clinical course of sarcoidosis in order to help physicians and researchers better understand and treat the disease. A. Gerke (University of Iowa).
Surveys and Petitions
Sign the Charter for Lung Health. This is an urgent call to action by the Forum of International Respiratory Societies (FIRS) for better lung health around the world. The petition will be delivered to The Director-General of the World Health Organization.
Research project on how the rare disease patient voice can be better captured in health technology assessment (HTA) processes for therapies to treat rare and ultra-rare conditions. Carried out by NICE Highly Specialised Technologies and Alpha-1 UK Support Group. This survey aims to uncover what is lacking in the HTA system that would make the process better and more engaging for rare disease patient groups. Click here to have your say.